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Man o man! I’m fighting cancer. Fibromyalgia, Diabetes, arthritis, ddd, and at that time rls. I was also fighting the change. Lord I was so miserable. My dr wouldn’t send me to any specialists because everything could be a side effect of chemo.... finallly having finished chemo and radiation I’m finally getting help. The only thing that helped me was a heating pad or going outside and doing bicycle excersizes while in a chair. Hot flashes and legs scissor kicking beyond the width of my queen size hospital bed I thankfully inherited.... I was so sleep deprived that I lost my 9 year job, lost my house because Kaiser told me it was all in my head. Go figure. At times I would wake with my waist and bum flying with the legs, arms too. So a warm shower( if nothing else it helps take ones mind off even for 5 minutes) and heating pad. That was all. Period. Sometimes I would take my pain medication and on 30 minutes it’s gone.
Fast forward to today. Neurologist. God bless the man! My other useless pm ( now
my FORMER pm) gave me the lowest dose of pramipexole. She said it was the highest dose. Once again she was wrong. My neurologist doubled the dose! Then raised it one more time. Ask to try pramepexole. They might be able to try you on it based on your medical history. Now I only get the heebie jeebies as I called them. Even then I can still fall asleep. But I made add ivory soap to the bed if I ever have to max out pramipexole. Lol . And I do enjoy pickles now and then. I offer my advice as I did not see that medication in reading with keen interest the medications and crazy solutions. I have a friend who is on the max dose and is getting the symptoms again. But ask about it at your pm.
Have a good day to all! May rls behave a for a good nights sleep.
this is not a 'disease'---it is simply a magnesium deficiency---best forms of magnesium are citrate and malate---MAGNESIUM CALM is a powdered version which is nice to drink as a tea before retiring for the evening---it promotes calm and sleep and restless legs and leg cramps---we like the lemon version, but they all work nicely---and eat a banana a few times a week to keep magnesium/potassium levels balanced---why take any drugs when you can eat your medicine?
taking Sinamet (a drug that they give to patients with Parkinsons Disease). I was on the strongest dose and taking two in the evening before going to bed; however, I had to take them at least two hours apart otherwise I have a violent case of vomiting. After having taken them for so long they were becoming effective less often. With this in mind I visited my doctor and she was once again going to up my dosage and then realized I was already on the strongest does, so instead I now take three at a lower dose (again separating the ingestion by 2 hours each). They worked great for the next few weeks and then began to be sporadically effective so I decided to try something different (on my own initiative without consulting my doctor or a pharmacist, who has an even better knowledge of pharmacology than my GP) --- what I now do that works great is to take one tablet a place it under my tongue and then rub my tongue over it gradually, keeping it there for up to two hours before doing this for a 2nd and again right a bedtime. Taking the sinamet sublingually has worked better than anything before; however, I do plan on discussing this with a pharmacist and if he foresees no problems with this type of uptake, will share my method of application with my GP. Note: My current prescription is for Levodopa 100 mg/Carbidopa 25 mg. Also I take no other medications, and I do not drink or smoke. I hope that you see this note and that you find it helpful. I am hoping that one day this RLS torture can be resolved once and for all without the need for drug intervention, but a positive cure.
You are so right! I had RLS for years and Magnesium Bisglycinate totally stopped the RLS in its tracks.
I've had restless legs since I was about 20 years old. It took me a long time to figure out that caffeine is my problem. When I stopped caffeine the RLS went completely away. I stayed off caffeine for years and years and about a year ago I slowly started introducing it into my diet again. Well, after a few months I once again had to deal with RLS. So no more caffeine for me.
Magnesium doesn't help relieve my restlessness. Eating bananas isn't a good option for me because of my diabetes. Kiwi and tomato juice are good magnesium/potassium sources but they don't relieve my symptoms and the kiwi is also high in fructose/sugar. Not eating after around 3 pm is my best bet for relief but isn't a good choice because of my diabetes.
I've just read through all the comments and it was helpful to see what other sufferers have to say about remedies. Mine started when I was pregnant (my child was 33 yesterday!). For me it comes and goes, sometimes it's really bad for weeks, other times it seems to go away. I've got as far as thinking it must be related to diet in some way. Eventually about 5 years ago I discovered, by accident, that magnesium supplements help. So it was encouraging to read many others have found this helpful. Then I did an internet search for home remedies about 3 years ago and it came up with citric acid, which is in all citrus fruits. So now if it gets bad I put 6-7 splashes of lemon juice in half a glass of water. BINGO! It's gone about 10 minutes later. I have also tried the soap method and that seemed to work too. The other thing that works, but I find it difficult to do, is deeply massaging my calf and thigh muscles. Wishing everyone good luck in finding the remedy, drug or otherwise that gives complete relief. and Happy Christmas! x
For the past 40 years, I’ve had the most severe RLS symptoms of anyone I know. They don’t bother me as much as they bother those around me. My roommate used to throw shoes, books and magazines at me at night to get me to stop. I’d wake thinking I fell asleep in the closet. My long-suffering wife’s mantra is “Stop. Shaking.” It doesn’t hurt me because my legs automatically compensate by shaking back and forth. Every day. All day. And night. They are shaking as I write this. When nervous, such as on deadline, they pump up and down like sewing machine needles. I work in a 51-story office tower and people around me have said they felt the building moving.
I only feel the symptoms when people ask me to stop moving my legs: creepy-crawlies, pulling, stretching. Feels like growing pains and I want to jump out of my skin. My (soon to be former) doctor poo-poos it. Yale was conducting a study and said I didn’t qualify! (That’s probably Yale just being Yale. Their motto: “If it’s obvious, it can’t be true.”)
I’m taking potassium, magnesium, and B for other reasons and they have no effect for me. I’ve noted a number of the remedies recommended in the Comments, will try them and will see how it goes. More exercise is probably a good start. It seems to fix a lot of things.
Thanks, everyone, for sharing thoughts and ideas.
I have had restless legs for about 58 years. It seems to run in our family, especially the women. My aunt found a website called Nature's Inventory. They have a product called Night Time Leg Calm. I have been using this for the past 8 years with great success. I put it on every night before I go to bed. It lasts all night and most all the next day. It also works for my sister. You apply it to the small of your back and rub it in. Sweet Dreams after that.
I have intermittent RLS, and my neighbor recommended VICKS vaporub, which she just happened to hear about on the radio. It works for me 99% of the time, and I bless my neighbor every time I wake up in the middle of the night with twitchy legs! I just rub a little on the instep of my feet where all the veins are, and then put sox on, which I do anyway, because I always have cold feet. It's a cheap enough remedy to try, and no side effects. I even bought the cheaper store brand! Since I don't have RLS all the time, it seems I must be doing (or not doing) something, but I can't figure it out. I will try some of the other suggestions posted--more water, limit caffein, sweets and alcohol before bedtime, supplement with vitamins E, D, B complex, magnesium and potassium. BUT--I won't leave home without my Vicks in the suitcase! I see another Vicks remedy mentioned here on 11/24/15--but I don't use a lot of Vicks, just a light film on the instep.
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